GSDNet is an Internet Mailing List for patients, their families and friends, and professionals.
It is a mailing list for all Glycogen Storage Diseases, including Pompe’s Disease, and here you will meet a great bunch of people.
You can email with other Pompe’s patients world-wide. And if you feel alone and isolated with this disease, or if you want to talk with someone who will understand just what you are going through, if you want to ask questions or you just want to receive the latest news, then this is the right place for you.
You can receive email for all Glycogen Storage Diseases or you can set your particulars so that you will only receive mail pertaining to Pompe’s Disease.
And the good thing is - It’s Free!!
To join -
Write the following message:
Subscribe GSDNet (your name)
And then send this message to:
LISTSERV@LISTSERV.ICORS.ORG
That’s all!
Hope to see you there soon!
If you have never been part of a mailing list before and you would like to know just how they work, need other information, or if you have problems subscribing, please let us know. We will be happy to help.
